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ALD adrenoleukodystrohy
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| Understanding |
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ALD is a genetic neuro-degenerative disorder. 3 types (classic, neonatal, andre-no-myelo-neuropathy). The Myelin white matter nerve insulation is lost from nerve cells. Possible treatments include Lorenzo's oil, bone marrow transplant, protease inhibitors, gamma-gobulin, and myelin-producing cell transplant. www.drgreene.com |
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What is ALA? http://www.alsa.org/als/what.cfm?CFID=113358&CFTOKEN=64372120 |
| Hugo Moser, MD director of neurogenetics research center, Kennedy Krieger Institute, Baltimore + professor of neurology, Johns Hopkins University |
| Myelin Project, Washington DC, USA www.myelin.org |
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| Alternative Medicine |
| Lorenzo's oil (oleic + erucic acids) www.alternativemedicine.com Jan/Feb 2003 Lorenzo Odone |
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1992 Movie, VCR, DVD Lorenzo's Oil http://endeavor.med www.teachwithmovies.org |
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Lorenzo oil movie is based on family of Augusto Odone. 10/8/2005 week-end edition updates us on the Odones, the MDs and subsequent case studies. www.wsj.com |
| Autobiography/Biography |
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So Much So Fast - autobiographical film of Stephen Haywood http://westcityfilms.com/smsf.html |
| Lorenzo oil movie is based on family of Augusto Odone. 10/8/2005 week-end edition updates us on the Odones, the MDs and subsequent case studies. www.wsj.com |